Time heals all...
When we were diagnoised everyone told us it would become normal. At the time that felt impossible. How could anything be normal again? It was all so overwhelming. But now it's so routine, I still end up getting up at 3am 3 days a week. On the nights I don't have to get up I often wake up anyways. It can still be stressful. Like when we can't get her blood sugar down. And her behavior is odd. Or the copays. Thankfully we have insurance because it is all incredibly expensive even the copays. Our once perfect budget is out of control. I know we just got back from a cruise - but that was funded by family. And I live in dread of another hospital visit. Our 3 day hospital stay was over 15K. We only had to pay $1,500 of it. I can't imagine the families who do this with out insurance. This is our normal.
But we have awsome days. For my birthday we did Seattle's Ride the Ducks. And had such a fantastic time. We quacked our duckie whistles and saw the Sleepless in Seattle house. Bean can do all her own shots. And the best news? We start pump training on March 1st.
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Congrats on the pump! We LOVE pumping :)
ReplyDeleteHappy Birthday!! Glad to hear you are all adjusting..it really does become second nature after a while eh? Is your daughter being seen at Children's in Seattle? If she is, did you know you can apply for financial assistance? I didn't think we would qualify but someone encouraged me to apply and we actually were approved. They pay 100% for EVERYTHING - all doc visits, hospital stays, and prescriptions (filled only in their pharmacy). It was a lifesaver for our wallets...
ReplyDeleteCan't wait to hear about your pumping adventures!!