Tired and jet lagged...
We just got back from a cruise and I'm planning on making a post on everything I learned when cruising with a T1D child. But I'm so jet lagged and tired that it will have to wait for later. But I have lots to share including some pretty pictures.
I have noticed that I've reached a point with T1D where it's normal and routine. Even though I hate it on those days I want to be lazy - I attempt to remain positive and see it as simply a part of who my child is. Which brings me to my pet peeve. I have to confese I'm getting a bit tired of hearing people respond with comments like 'Oh that's a shame.' When finding out she is a diabetic. It's so negative - like there's something wrong with her. And yes, T1D isn't how it's suppose to be - but I don't want my child hearing how sad or bad it is that she has it. I want her to accept it, live with it and have a good life with out trite pity. Jilly is proud to be who she is - broken pancreas and all and there's nothing to be ashamed of for it.
My other pet peeve (and I know it's shared by others) is when people realize what she has and respond with that they or someone they know is a Type 2 diabetic. I want to start responding to the next 'Oh my Aunt has type 2 diabetes' with a blood curdling scream. It's not the same thing!
T1D JillyBean Story
JillyBean was diagnosed with Type 1 Diabetes on Sept 6, 2009. Type 1 and Type 2 are two very different monsters. Type 1 is genetic, it is not caused by diet or exercise. Jilly has to take injections of insulin before each meal, before bed and sometimes in the middle of the night. There is currently no cure and if not controlled correctly T1D can lead to very serious and deadly complications.
I am not a doctor and am in no way qualified to give medical advice. I am only a mom who is blogging in order to share with others what it is like to live with T1D, to connect with other children and parents who are also living through this, and to share experiences and tips.
About Me
- Melancholywings
- A mom to a T1D child, sewer, crafter, thrifter and collector. I'm attempting to live a simple and colorful life.
Copyright 2008- 2009 Elizabeth Cummins. Please feel free to link me but please do not use content or photographs with out permission. All tutorials and patterns are for personal use only.
Subscribe To
Posts
Comments
Oh wow yes we must accept what and who we are and we have diabetes and so be it . Nothing to be ashamed of at all .
ReplyDeleteI'm on board with you. I know they are just trying to be empathetic...but man, they have no idea.
ReplyDeleteWe are supposed to use these instances as teaching moments...But sometimes, I just don't want to get into it. :(
LOL ya I have those pet peeves too...or when they say, "is that the bad one or the good one?" What kind of question is that anyway? Sheesh!!
ReplyDeleteBut it isn't anything to be ashamed of...it's a disease. The disease isn't all consuming...it's only a small part of what makes our kids our kids. :D